Lambeth Advance Care Planning Consortium Project

Supporting people in Lambeth to plan ahead and record future care wishes

About the project

Lambeth advance care planning consortium is delivering a three-year project 2019-2022 to support people in Lambeth to plan ahead and record their future care wishes.

The project brings together a range of organisations to make advance care planning more accessible for the borough’s diverse communities.

It includes:

• awareness raising events across Lambeth

• a new one-to-one support service

• work to embed advance care planning across the local health and care system.

Target audiences

The project supports groups who face a range of health inequalities, to help ensure their needs and preferences are better met.

In particular we are working with:

• Lambeth’s sizeable Portuguese-speaking community

• people with learning disabilities

• people with long-term conditions

• carers

• people with dementia.

Delivery Partners

The project is delivered by organisations already working with these groups as well as those with specialist advance care planning expertise. The project is led by Compassion in Dying and Healthwatch Lambeth.

The other delivery partners are:

Alzheimer’s Society Lambeth

Age UK Lambeth

Ask Erwin

Carers Hub Lambeth

Lambeth Learning Disability Assembly

St Christopher’s Hospice

Stockwell Partnership

Project activities

Awareness raising

Project partners run a range of outreach activities across Lambeth to explain what advance care planning is, the value of recording your future wishes and how to go about it. Our activities include:

• The ‘Before I Die’ tent at the annual Lambeth Country Show, where people are invited to consider what is important to them by sharing their bucket list dreams and considering their future care wishes

• Information stalls at other local events

• Tailored workshops with our target audiences – for example, themed sessions at the Learning Disability Forum and carer support group meetings

• A local events programme for Dying Matters Week in May which also supports broader discussions around death and dying.

Get involved:

If you are running an event in Lambeth and would like to include an advance care planning stall or activity, please contact us.

The one-to-one service

Our new, free service will offer one-to-one support to help people:

• consider what matters to them in relation to their quality of life, medical treatment and priorities for their health and care

• make an advance care plan.

Depending on what’s right for each person, the service can support people to complete an advance statement, advance decision and/or lasting power of attorney for health and welfare.

The service will be available from winter 2019 through Age UK Lambeth’s safe and independent living (SAIL) referral service.

It will be delivered by trained staff and volunteers from consortium partners and other local organisations. The training will be delivered in partnership by Compassion in Dying and St Christopher’s Hospice. After completing their training, our team of ‘champions’ will receive ongoing support and development from Compassion in Dying.

The training will also be adapted for people with learning disabilities who will provide peer support to other members of the community with learning disabilities, using easy read materials developed through the project. This strand of the project will be facilitated by a support worker from the Lambeth Learning Disability Assembly.

Get involved:

If you are interested in becoming one of our volunteer champions or you are from an organisation providing support to Lambeth residents and might like to offer advance care planning support to your clients, please contact us.

Embedding advance care planning locally

Our project aims to develop a sustainable advance care planning support offer to Lambeth residents. To achieve this we will:

• develop a train the trainer course for the champions network

• map existing advance care planning initiatives such as Coordinate My Care and support from end of life care providers, to ensure our new service complements them

• explore and develop a range of referral access points for the service such as GP patient registration forms, care coordination processes and community link workers/social prescribers.

Lambeth Clinical Commissioning Group (a key member of the Lambeth advance care planning consortium) will also run complementary training for statutory health and care professionals in summer 2020 to help build:

• understanding of advance care planning

• confidence to have an initial conversation

• knowledge of how to refer into our new service

• confidence to implement advance care plans.

Further information

The project is funded by the National Lottery Community Fund through its partnership programme.

Find out more

To find out more about the project, please contact Kate Damiral at Healthwatch Lambeth, tel: 020 7095 5764, email: kate.damiral@healthwatchlambeth.org.uk

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