Progress – Improving Psychological Health in Critical Care Survivors

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Progress – Improving Psychological Health in Critical Care Survivors

ImPROving Psychological Health in Critical CaRE SurvivorS (PROGRESS)

Who are they? 

They are a research collaborative of experienced critical care researchers and clinicians (doctors, nurses and psychologists).

 What is this group about?

The group is interested in improving psychological recovery after critical illness.  They know that:

  • Psychological health after Intensive Care Unit (ICU)/critical care is a problem
  • Some patients like ‘filling the gaps’ with ICU follow-up and diaries and some don’t
  • There is a relationship between psychological health and other aspects of recovery (including cognitive and physical health)
  • Individuals react differently to different interventions

They want to develop and test an intervention to improve the psychological health of ICU survivors. They want to know whether personalised ICU discharge summaries improve peoples’ well-being and overall health outcomes.

How can you get involved?

You can get involved in two ways:

  1. Attending a stakeholder event
  2. Being part of the study group

Stakeholder event

They are holding a meeting in Central London on 19th October 2018 1-3pm.

This event will provide an opportunity for you to help them shape the project. They are inviting adults (over 18 years) who have been a patient in an ICU in the UK within the past five years. Drawing on your own experience, you will be asked to talk with others in a group setting and to share your opinions on what information you think people need on ICU discharge and some of the challenges involved in providing information to the right people at the right time. Travel expenses will be paid and refreshments will be offered during the meeting. They welcome the input of people from all backgrounds, including those with limited English (if able to bring an interpreter).

Study group

They are looking for one person to be part of the study group on a longer-term basis. You would need to be over 18 years and have been a patient in an ICU in the UK (for at least 5 days) 1-5 years ago. Along with another patient representative, you would need to represent how other patients may feel as well as give your own views. They are aware that this can be a difficult subject to talk about as it may bring back memories of your experiences, so you may want to think about whether you feel comfortable contributing to this group. They would also ask you to comment on research documents outside the meeting. Most of the initial work will focus on developing and planning the research study and (if funding is successful), helping to deliver the research. Previous experience of undertaking a similar role would be helpful but is not essential. This is a voluntary position but travel expenses will be paid.

How do I find out more?

For further information or to register your interest in one or both roles please contact:

Professor Natalie Pattison:

Email:            natalie.pattison@nhs.net

Phone:           01707 285819 (please note this answering machine is accessed only intermittently so there may be a delayed response).

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